Wednesday, January 31, 2007

Today, January 31st, Two Thousand and Seven...

January 31, 2007 Day +1400 Day 1098 off therapy
Logan and I went to the Dr. this morning. Sure enough, it was an ear infection. He has some numbing drops and Augmenton for it. Hopefully, he will be feeling better soon. He weighed 35 pounds and Taylor is 37. He will pass him before long. Oh, Taylor will be mad!

We went on in to school after the Dr. We were only about an hour late. After school we picked up his meds and I went ahead and gave him a dase right then. He did not like it, but he took it. That is one thing he does better than Taylor. He will make a face, but I don’t get the drama that I get with Taylor. Taylor has to gag and snarl and jump around like he is having convulsions. He is the drama king!

Once we got Taylor we headed for home. Taylor is convinced it will snow tonight. It is supposed to snow up north and have ice issues, but not here in the ham. However, I have made an appointment for March 30th which is supposed to be a weather day for the schools. It is going to snow or ice so that we miss school and I have to take off work to take him to the Dr. rather than get to use a weather day for it. You wait and see!

That is about it for now. Please pray for our little buddy Bradley. He fell at school today and his tooh broke off in his gum. He was in a lot of pain when he left. We hope you are feeling better buddy! Pray for all of our friends who are battling their own illness or injury. Pray for Taylor’s continued success.

30

January 30, 2007 Day +1399 Day 1097 off therapy
This morning Logan has really been hurting. His ear is not draining, but he will not let me touch it to even look at it. I have called the Dr. but they could only call drops in and I already had that and it wasn’t working. We have an appointment for tomorrow morning. He cries if you pull his shirt on or off or touch his cheeks. He either has something in it or it is real infected. He slept through car pool today and again at home. You can tell he doesn’t feel good. He got in trouble with his teacher today. He is talking very ugly. He sat in time out at school and got in trouble from daddy too. It is so embarassing!

Taylor had anoother super day! He did all of his homework like a champ and cleaned up his room. We didn’t do baths tonight since Logan didn’t need water in his ears. He loves a bath so I couldn’t put Taylor in and not Logan. They didn’t do anything to get dirty, right?

We just hung out tonight. It is once again, so cold out. We all got tucked in a little early and watched TV.

29

January 29, 2007 Day +1398 Day 1096 off therapy
Monday again! It has been so cold here lately that we did not want to get out of our snuggly beds. It was real hard to get up when we knew that Gam maw and Paw Paw were in tropical Aruba basking in the sun while we were in the froaen tundra. Okay, all you northerners don’t need to know that it is like 45 degrees and that is nothing to ya’ll. Anyway, we did get up and get moving on this cold morning.

Taylor was excited to get to school and show off his mouth and missing tooth. He is all excited now that it is over! I was by myself today, but it was okay. We didn’t have a big class anyway. After school Logan and I ran a few errands and then headed to get Taylor. We met Jim at the mall this evening. We went to the Belk sale and got some good deals. We ate Chick fil a where Taylor ate about 10 nuggets.

On the way home Jim hit a traffic jam, but he was kind enough to call me and tell me to get off the interstate. It was a good thing since Logan almost didn’t make it home to the potty in time as it was. Lets just say, he is not constipated anymore! Poor fellow! He told me tonight that his ear hurt and that is why he cried at Gam maw’s house. I knew he had been up a lot that night, but just thought it was a new stage. He has not mentioned his ear until now. He seems fine otherwise, so I will watch it and see.

We got baths and got ready for bed once we finally got back home. Taylor was asleep in no time flat, but Logan was up for a while. He just played in his bed. I don’t really know what time he finally went to sleep.

I had to call the pharmacy today. I got to talking to a girl at work and found out her husband took 10mg of Singulair and that is what Dr. Ansari told us to give Taylor. I was sure that couldn’t be right, but it is. There is nothing between 5 and 10 and since 5 wasn’t enough for him 10 was the only option since I will not take him off Singulair.

Please be in prayer for all of our firends that are battling cancer or other illnesses. Pray for Taylor and his success against cancer.

28

January 28, 2007 Day +1397 Day 1095 off therapy
Hello all. We kept our promise and stayed home and cleaned house. It is kind of hard to get it all done when the kids drag stuff out faster than we put it away, but it looks much better.

Taylor woke up to find the tooth fairy had taken his tooth and left money in its place. He had actually left her a dollar, but she left it for him. He liked the idea of trading teeth for money, so maybe the next loose tooth wont be so dramatic.

Logan hasn’t acted like he feels real good. He has complained of his ear hurting, but it is not draining. I am putting drops in it just in case and hope that he is okay until his check up next week.

There is not much to tell today. We just hung out in our pj’s all day. Logan is the only one who got dressed and that is only because he begged too. He likes to be dressed and have shoes on all the time.

Be in prayer for Taylor and his success against NB. Pray for all the kids out there who are fighting this or some other battle.

Saturday, January 27, 2007

27th

January 27, 2007 Day +1396 Day 1094 off therapy
Be sure to read Friday’s update to learn about my conference with Taylor’s teacher and his Puminlogy appt. with Dr. Ansari.

Today was the second Saturday in a row that we didn’t have kids and I couldn’t sleep late. I was wide awake at 7:44. UURGH! I got up and got ready and we left to get the kids who had stayed with Gam maw and Paw Paw. We headed to the circus which was great for the first half. Logan was up all night wanting me. I guess we have hit a new stage as he has never had a problem spending the night away from home before. He was tired and begging to go home before it even got started good. Taylor was eating cotton candy and watching with his mouth wide open until he realized that his tooth was literaly flopping out of his mouth. If you pulled his lip down it would just dangle out of his mouth. He got so upset over it that he thought he was going to throw up and ended up crying himself to sleep. When intermission started he was out like a light and Logan asked if it was over we just made out exit. I hated to leave, heck, I was enjoying it, but why stay when bone is asleep and one is begging to go. Taylor woke up when we got to the mall to meet Gam maw and Paw Paw. We went to Build a Bear where he used his birthday gift certificate to buy a tent for Lightning, his new bear. We then went to Brookstone where we played with the most magnificent massaging recliner you have ever seen. It was only $4300. maybe Jim will get me one for Valentine’s Day. Ha! We all loaded up to go grab lunch and the boys went with the grandparents. When we were about 5 minutes down the road Taylor called me to say that his tooth fell out!!!! It got caught on his lip and pulled out. How funny! He ended up dropping it and Paw Paw had to take the seats apart to find it, but we got it. It is kind of yucky since you can see the white under the cap. He is excited now that it is out, but it was a touchy situation for a while. As soon as the stress from that tooth was gone his sudden illness and need to throw up was gone. He gets that from his mommy!

Us girls all went for a pedicure after dinner and the buys went to play. I swung by to get the boys and found Logan asleep in Gammaw’s floor covered up with her pink house coat. You couldn’t see his devil horns the way he was laying:) It was so sweet. He slept there while we went to Christian’s birthday party and Paw Paw brought him home later.

It is now 10:45. Both boys are all tucekd in and Taylor has his tooth under his pillow eagerly awaiting the tooth fairy. I wonder what she will bring? I guess I better go tuck in too! Tomorrow is clean the house day so I need all the rest I can get, it will be a big job!

26

January 26, 2007 Day +1395 Day 1093 off therapy
What a busy day. We started the day as usual. However, it got a little busy as the day went on. I left work at 11:15 and went to meet with Mrs. Thornton (k5 teacher) and Miss Howard (speach teacher). I feel much better after talking with them. The homework that was such an issue is really just something to do periodically to keep him from forgetting what he has learned all year. We do not have to battle through it every night. Mrs. Thornton showed me some work he has done and I was very impressed. This may not be exaclty right, but when it comes home we will post it here for you to see. Anyway, he wrote I can ride 100 motorcycles and he drote it like this, I can rid 100 motrsykls. That is pretty close, but I know it isn’t exactly what he wrote. Point being, he is doing very well at this point in the year. We discussed having him repeat kindergarten due to his social immaturity not academic skills. It was kind of hard to hear the teacher say he may need to stay back, but it was also kind of known. He is small and did miss a lot of years to gain social skills like other kids. He has been through a lot and a lot of cancer kids do repeat grades. He is also a boy and boys often need to repeat. We do not have to decide until the end of the year, so we will be monitoring progress and discussing it more. My one concern is that he is such an emotional child that I am afraid he will label himself dumb which he is not or that he will feel so “blue” about his friends moving up and him not that he will lose confidence. However, I would rather hold him back now than in an older age where kids will be cruel about it. UURGH, parenting is hard! We have a lot of friends cancer and non cancer that have been through this and we will talk to them. We also have the utmose respect for Mrs. Thornton who I know only wants what is best for Taylor, so we will certainly be taking her advice to heart. I wish she could just go to first grade!!!

After the meeting at school in which the fabulous Mrs. Thornton arranged to do while Taylor was in technology and then could be checked out without me having to make several trips (thank you), I checked him out and we headed towards Children’s hospital for his pulminolgy appt. We ran into Meredith which is always good. We got registered in the clinic and then went up to get a chest x ray. It kind of sucked since he just got one in December, but what do you do? As soon as we walked back into the clinic they called us back. He was 106.78 cm tall but I never saw how many kilos he was. I don’t imagine he weighs much more than his usual 37 pounds. We were sent to a room and did some of the standard things. He blew into the dolily for lack of a better word. That took a few tries because he wanted to suck in a second breath and you can’t do that. He finally got it though. The nurse came in to ask all the questions. We got to chit chatting and found out she lives on out street. How cool is that! Now we know one of our neighbors. She was a very nice lady. Soon Dr. Ansari came in. I LOVE him. You all know I love or ONC. team, but I have known them forever and have been through a lot with them. However, I don’t usually instantly love our docs, but this guy is great. He was not an arrogant turkey like Dr. Hill (yeah, I said it for the world to see) and he takes the time to sit down and talk rather than run in and out in 5 minutes unlike our regular asthma Dr. He took the time to explain that sinusitis has two kinds allergic and bacterial and Taylor has both. Go figure! Allergic is just what is says, an allergy to something causing clear drainage, but due to his narrow passages he gets clogged up and has sinus problems. When it is green drainage it is bacterial, obviously. He gave us good news in that we did everything right in getting the ionic breeze and all the hypoallerginic bedding stuff. However, bunk beds are the worst thing for him. He sleeps on the bottom and therefore all the dust from the top hits him. He will need to move to the top or take them apart. He wants to sleep up top, so I think for now we will just do that and maybe later take them apart and move one to Logan’s room. He has upped all his meds. If you remember the interesting study about Singulair then you will excited to know he upped that med from 5mg to 10mg. I was very happy to do that. He will not take a .63 dose of zopenex rather than .31. He can not figurte out why they left him at that low dose since there are studies to show that it doesn’t work. We will try these new doses for a few weeks and then go back for an upper GI. This will not be a pleasant test, but IF he has reflux it could be the cause of it all. Wouldn’t it be great if this Dr. found and fixed the problem that easily!!!! I promise you all right now I will kiss him if he does! We go back on Feb. 28 for the GI test and again on March 30 to get results. I do not look forward to him having to miss school again nor getting him to drink the flavored barium, but I am eager to see if we are closer to an answer.

After the clinic visit we headed out but made a detour to the blood drive and saw our good Red Cross buddy John. We also saw Dr’s Berkow, Bryant, and Barnhart. It is always good to see them outside of clinic. We ran up to 4 tower, but didn’t see any familiar faces. After all that is was time to get Lolo. Temperance made the mistake of telling me she was off today, so I conned her into picking up Logan so that I didn’t have to take him with me. Thank you Tempy!!! She and Chris were even brave enough to go out to eat with him! I picked him up and ran home to get my party stuff together and head to the purse party. I I got the cutest purse, I can’t wait for you all to see it!

Thursday, January 25, 2007

25

January 25, 2007 Day +1394 Day 1092 off therapy
Yeah, it is Thursday only one more day of school and work. We all slept way late today, but somehow managed to get to school and work earlier than usual. Taylor went crazy when I brushed his teeth today. He said there was a hole in his tooth. That would be because it is sooooo loose that it is barely hanging by a thread on the front side. He can stick his tongue between his tooth and gums. He will not wiggle it at all. It would fall out if you blew on it, but he wont even open his mouth when you get near him.

He turned his shirt around backwards at school today. I have no idea why, he said he was just being silly. He made up for not eating his lunch the other day. I had already packed ham and cheese and he wanted a cheese sandwich so I just threw that in there too. He ate it all!

Logan had a good day too. He was so sleepy after school. He stayed awake all through carpool, but he fell asleep as soon as I put him back in his carseat and turned the tv on. He took a good nap at home too. He is still poking at his right eye.

Taylor has his Dr. visit tomorrow. I am sure I will not learn much since Logan will be going and I wont be able to hear the Dr. I also have a conference with Mrs. Thornton about his reading. He actually did great with his homework tonight, but usually it is a struggle. She was nice enough to let me meet with her 30 minutes before he had to check out. I hope he is just pulling our legs at home and not wanting to do it.

I guess that is about all there is to tell you from our neck of the woods. Please pray for Taylor’s continued success. Pray for Evan who is starting the etoposide that clogged his line last time. www.caringbridge.org/visit/evanthomason Stop by and visit Joey Ard’s page. He woke up from his coma yesterday and is doing very well. www.caringbridge.org/visit/joeyard

24

January 24, 2007 Day +1393 Day 1091 off therapy
Today was the 100th day of school. Only 88 more to go! Taylor had a lot of fun doing fun activities. He had to bring in 100 of something to count and we sent marshmellows. He was mad since he wanted to birng toothpicks, but I didn’t think Mrs. Thronton would like that. He got in the car and wanted to show me that he could count to 100, but he wanted to start at 11 since I knew he knew how to count to 10. He is a nut!

The morning started crazy when a transformer blew and the neighborhoond went dark. It was a big ole hassle to get the garage door open and since it was already 7:35 we were pressed for time. It was a mess!

Logan had a good day as well. We took a friend to car pool with us to meet his mom. It was great since Logan was occupied. We had a good time playing games and counting cars and buses.

We came home to find that the power was back on, thank goodness. We did homework and got that out of the way. Both boys cleaned up their rooms though you wouldn’t know it now! We went to eat at San Antonio where Logan did good, but Taylor didn’t. It wasn’t that he didn’t feel good or anything rather he was using his chicken as a fort for his power ranger men. He brought it home and ate it later.

It is now bed time and nothing really to report other than our normal happenings. We have plans to go to the circus this weekend thanks to Camp SAM and we are going to a birthday party, so the kids are excited. Sunday is here by reserved to clean this nasty house. Yeah right! We shall see how that goes.

Please be in prayer for all of our friends and for Taylor’s continued good health!!! Pray for Evan who is back at the Jude for chemo that was started late due to creatinine clearance issues. Been there done that! www.caringbridge.org/visit/evanthomason

Wednesday, January 24, 2007

Good links...

How this all started?
Latest News
Official Blog
Photogallery
Taylors Webpage

All dressed up...


And the 23rd...

January 23, 2007 Day +1392 Day 1090 off therapy
Today was another good day. It is so cold out and I hear from ole James Span that the next few weeks will bring record setting cold into the area. Could it snow? Wouldn’t that be fun. Taylor is ready to buy that sled he wanted for Christmas. I can not convince him that it will not snow that much or not again for years. I do wish it would snow a good snow that they could play in. Logan has never seen snow and Taylor has only seen NYC snow.
It was a good day despite none of us wanting to get up. I ended up getting dressed at the very last second seeing as we were running behind this morning. I just grabbed the first thing hanging in the laundry room. I didn’t realize until I tool Logan’s coat off at school that we matched. How embarassing. I make the kids match all the time, but I don’t want to match too. We all had a good laugh about it.
Taylor did not eat any lunch today. He said he didn’t feel good at lunch. He had a headache. He is stuffed up and I am sure that it is his sinuses and he has a sinus headache. However, it is very hard not to let your brain start going elsewhere. He came home and played and ate a few snacks just like normal and he ate a good dinner. He said later that his head felt much better. Let us all be in prayer that this is indeed just sinuses and it will end soon. He has done his saline solution several times today and hopefully that will help. He has an appointment this Friday with the pulmonologist. I hope we can get to the bottom of some of his problems.
Logan is stuffed up as well and has been coughing just a little. He doesn’t really seem to feel bad. He is still blinking really bad and is actually letting me put the drops in his eyes. Jim went to the eye Dr. Monday and though she did not look at Logan she did listen to Jim’s conderns and she feels pretty sure it is allergies. He did do this in the spring and my logic is telling me that it is just allergies and all this cold weather. Again, it is just hard to not let your brain go elsewhere even with your healthy child.
It is getting late and I need to go to bed. I am going party crazy this month. If you are interested in coming to any of them let me know, the more the merrier! Friday, Jan. 26th we are having a purse party. Put your favorite pictures on a purse. Feb. 4th, Premier Jewelry party and Feb. 24th Partylite candle party.
Please be in prayer for Taylor’s sinuses and Logan’s eyes. Be in prayer for all of our friends who are fighting thier own battles.
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22 and counting...

22nd January 2007
January 22, 2007 Day + 1391 Day +1089 off therapy
Monday, blah. We were all dog tired this morning. Taylor is all chugged up again, blah. We all had a good day once we got moving. I don’t think he feels bad just chuggy. Logan on the other hand I don’t think feels real good. He is blinking like mad with dry eyes. He is whiney as all get out and grumpy.
We had to meet daddy at the eye Dr. since I had to medical card to buy the contacts. That took a while, but I was able to get Taylor’s homework done while we waited and Logan was able to get a nap in. We went to eat in Hoover since we were already there. Logan hardle ate a bite and Taylor did fair. It was so cold in there that I don’t think anyone could really enjoy it. Jim couldn’t see with his eyes dialated and Taylor liked the way his eyes looked.
Please be in prayer for my good friend Cindy’s mother in law. Cindy has been a friend for years and has been super supportive of us and Taylor. Her mother in law has been diagnosed with cancer and can not have surgery until her also newly diagnosed diabetes is under control. Pray that her diabetes is soon under control so that she can get the surgery that is needed. Pray for Taylor’s continued health. Pray for all the kids out there that are still battling.
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21st January 2007
Our handsome little guy…
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Sunday, January 21, 2007

January 21st Update...

21st January 2007
January 21, 2007 Day + 1390 Day +1088 off therapy
Wedding day!
It was a crazy day. We woke up in a rush and stayed that way all day. We had to bathe the kids and get them ready to go. We had to pack up all our good clothes and head out towards Haleyville which is about 2 hours away. It rained and poured all day long. The boys were good on the drive, but it was nearing lunch time and they were ready to eat. As soon as we got to Uncle Dugan’s house they raded the cabinets. Sorry Anna, for the fruit loops that they left behind! They were in heaven. They had never been to Dugan’s house and they loved it. Taylor played x box with the big boys and thought he was cool as a cucumber. We learned just this morning that Taylor would be the ring bearer and would have to get a tux. He got one at about 2:30 for the 3:00 wedding! He looked so darn cute! We all ripped out our cameras. Well, I ripped out Paw Paw’s game camera that just happened to be at my house seeing as mine was wet:) We all took off in our Sunday best and tennis shoes, it was so muddy. They wedding was beautiful. Taylor wouldn’t walk in by himself, so he came in with Gam maw when she lit the unity candle. How cute. Paw Paw was the best man, so he had someone to stand with. He did great period, but he really did good with no practice or talking about it. He dropped the rings off the pillow, so Paw Paw just held them. I think he was upset about it until the preacher dropped them too. Poor fellow can not smile if he isn’t really laughing about something, so every picture has a fake smile. That is okay though because he looked so handsome. He did not want to take it off. He wore it all through the reception even though all the rest of us had on jeans. He tried to convince me that Dugan said he could have it, but it didn’t work. He finally gave in and left it behind. Jim was thrilled to get “pay back” on his truck. When we got married they put sardines on the manifold, shaving cream all over the window and gear shifter. We were in a jeep with no top, so when the windshield wipers came on we got covered in shaving cream. It is all fun until it is your car! He was a good sport about the confetti and silly string all over the cab of the truck. Logan and Taylor even got in on the action and it is all on film, so they are in for it one day too!
We left Haleyville arounf 6:30 and headed for home. The boys rode with Gam maw and Paw Paw, so it was quiet in our car. We met them at their house to get the boys and came on home. We all went straight to bed.
Please be in prayer for a happy marriage for Anna and Dugan. Be in prayer for Taylor’s continued good health and that of his friends.
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20th January 2007

Saturday, January 20, 2007

The 20th of January...

January 20, 2007 Day + 1389 Day +1087 off therapy
Party day! We had a busy day. We started out by going shopping for dresses for Uncle Dugan’s wedding, tomorrow! It was kind of sprung on us, but that is okay, we are happy for them. After we all had something to wear, we went to the Olive Garden. Though it was Uncle Dugan’s wedding weekend he lost out too Taylor’s birthday weekend and Taylor got to choose where to eat. Both boys ate great. The Olive Garden employees sang Happy Birthday to Taylor too. He didn’t enjoy the singing there as much as last night, but I think he liked that chocolate cake better than the fried ice cream. He ate like a pig!
After lunch we rushed home and got ready for the party. I made a big boo boo. Only for Jim will I tell you all this. I accidentally dropped the camera into the cooler when I put the ice cream in. I didn’t even realize it. When we got to the party and I realized I didn’t have the camera I just thought it was still on the counter where I laid it to get the ice cream out of the freezer. I never thought twice about it. We had a great time at the party and Guh and Bob took pictures. When it was time to eat cake and ice cream we went into the party room and opened the cooler and there was the camera, soaking wet. OOPS! There was nothing to do about it then, so we just laughed about it and went on with the party. Taylor had a ball and got so many nice things. Thank you to all his buddies who came all the way to Pump it up and partied with him.
After the party we went to Hooters to eat. Not my choice mind you. When Taylor asked what it was Jim told him a place that had owls. Ha, my whole house is full of crazies! The kids ate pretty darn good there too. I guess they were hungry after all that jumping and sliding at pump it up. When we were done eating Taylor and Christian got to go sit with all the girls and the whole restaraunt sang Happy Birthday to them. Taylor got a picture with all the girls. How funny is that! You should have seen the looks on the mens faces when they all turned to see who was getting a Happy Birthdya wish.
It was now time to head home. We were all so tired, but we had to check out all the loot. Taylor got some awesome stuff. He is so excited. Thanks again to all that came!!

Friday, January 19, 2007

Birthday Update!!!

Birthday update!
Taylor had a great day today. He got to wear the Birthday hat at school and pick a prize from the birthday box. Mrs. Thornton is so cool! He was very excited that Daddy, Paw Paw and Uncle Bob came to eat lunch with him. They took pictures with Paw Paw’s camera phone, so we will get them on here soon. Be sure to scroll down a little ways and see the pictures added. Jim added one from Taylor’s Birthday fried ice cream and one of his MIBG scan from December. Yes, his shoulders are glowing, but that is okay. THe radiologist can tell the difference between normal and disease. This is why I do not look on scan day. The shoulders, knees, bladder, and port all glow. If I were to look, I would self diagnose him as “eaten alive” so I do not look.
On to better topics…. We all went to San Antonio Grill for dinner. We go there a lot and Jim got his picture made there on his Birthday and so did Logan. It was only fair that Taylor get to go too. He was so excited! He wanted to take the hat home. He only at the cool whip off the ice cream, but me and Gam maw ate the rest:) They sang Happy Birthday to him and put whip cream on his nose. It was cute.
The boys went to spend the night at Gam maw and Paw Paw’s house. Jim and I came home and made his cake. It turned out cute. He will like it. We have all the goodies bags made, all the food and drinks bought and ready to go. We are ready to party! It is now 11:13 and I better hit the bed so that I can party hardy tomorrow.
Please praise God today for Taylor’s health and his 6th birthday. Pray for his complete healing and that he never again faces cancer. Pray for Evan who is home home for the weekend, but still has low counts. www.caringbridge.org/visit/evanthomason
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19th January 2007
My favorite place to eat…
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19th January 2007
January 19, 2007 Day + 1388 Day +1086 off therapy
Happy Birthday Taylor!!!!!
Wow, I can not believe he is 6 today. When I kissed him goodnight last night, I told him it was my last time to kiss a 5 year old, so make it a good one. He laughed and wiped off the kiss! We made a bet that he would grow a beard over night as he turned 6 and he is convinced this morning that he can feel it! Praise be to God for the miraculous 6th birthday. To turn 6 is huge for any child, but for a child who was only given a 30% chance to live it’s a really big deal. Thank you God for this day and I pray for MANY more birthdays with Taylor.
Friday, January 19, 2001 was a cold, wet, nasty day. We left at 5:00 in the morning headed to St. Vincent’s hospital where a room was waiting on us and an induction was scheduled for 8:30 that morning. Well, true to hospital organization, when we got there we were told to go home and they would call us, there was no room. I cried and cried and told them I would have the baby in the hall if I had to, I wanted it out and I was not leaving! They put us in a tiny waiting room while they tried to figure out what to do about this problem. Lucky for me, in a few minutes they had figured out that the room that was reserved for us was on the 2nd floor not the 3rd and we were soon on our way. We got settled in, got the IV and started getting ready to have a baby. It was my first ever hospital stay and to say that I was nervous is an understatement. They started the pitocin and things went well until centimeter 5 and it stopped. I was hurting, but not bad and it just froze, no more progress. They came in to give me and epidural and to up things and see if we could get it moving. Well, it didn’t work on one side. I was miserable being numb on half my body and hurting on the other. They tried and tried to do it, but it wouldn’t work. They decided on a C-section which was fine by me, I was a chicken! They wheeled me in and moved me to the operating table. Boy, when I looked up and saw those lights, I changed me mind. I decided then and there that I would just keep the baby inside. Dr. D assured me that was not an option! At this point, Jim was still outside. They had told him that if a spinal wouldn’t work then I would be put to sleep and he would not be allowed to come in. If the spinal did work, they would come get him. Well, it didn’t work! Dr. D said he pinched me to see if I was numb, but I swear he cut me, it hurt! They put the mask on me and told me to count backwards from 100 until I fell asleep. On TV they go 99, 98, 97… and they are out. Well, when I hit about 70 I was freaking out that I was going to be awake and in pain through this mess. I eventually went to sleep and it was all over in a matter of minutes. Thank God! However, they never went to tell Jim, so when they opened the door he was waiting to here if he could come in or not and instead saw a seemingly healthy 8lb 4oz Taylor Jameson Watts. I never in my wildest dreams thought our journey would be the one we have taken, but I didn’t have a choice in that matter. I am so grateful for all of you and all of the hospital staffers that have cared for Taylor over the years. Because of God’s healing hands, your prayers and their medical knowledge, we are here today. Happy Birthday Taylor!!!!!
I will update again later. Paw Paw and Jim are going to eat with Taylor today at school and bring his cup cakes. He is thrilled!
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Taylor's Stats:
1389 Days Since Transplant.
1087 Days Off Treatment.
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My favorite psalm...

1 My God, my God, why have you forsaken me? Why are you so far from saving me, so far from the words of my groaning?
2 O my God, I cry out by day, but you do not answer, by night, and am not silent.
3 Yet you are enthroned as the Holy One; you are the praise of Israel. [a]
4 In you our fathers put their trust; they trusted and you delivered them.
5 They cried to you and were saved; in you they trusted and were not disappointed.
6 But I am a worm and not a man, scorned by men and despised by the people.
7 All who see me mock me; they hurl insults, shaking their heads:
8 "He trusts in the LORD; let the LORD rescue him. Let him deliver him, since he delights in him."
9 Yet you brought me out of the womb; you made me trust in you even at my mother's breast.
10 From birth I was cast upon you; from my mother's womb you have been my God.
11 Do not be far from me, for trouble is near and there is no one to help.
12 Many bulls surround me; strong bulls of Bashan encircle me.
13 Roaring lions tearing their prey open their mouths wide against me.
14 I am poured out like water, and all my bones are out of joint. My heart has turned to wax; it has melted away within me.
15 My strength is dried up like a potsherd, and my tongue sticks to the roof of my mouth; you lay me [b] in the dust of death.
16 Dogs have surrounded me; a band of evil men has encircled me, they have pierced [c] my hands and my feet.
17 I can count all my bones; people stare and gloat over me.
18 They divide my garments among them and cast lots for my clothing.
19 But you, O LORD, be not far off; O my Strength, come quickly to help me.
20 Deliver my life from the sword, my precious life from the power of the dogs.
21 Rescue me from the mouth of the lions; save [d] me from the horns of the wild oxen.
22 I will declare your name to my brothers; in the congregation I will praise you.
23 You who fear the LORD, praise him! All you descendants of Jacob, honor him! Revere him, all you descendants of Israel!
24 For he has not despised or disdained the suffering of the afflicted one; he has not hidden his face from him but has listened to his cry for help.
25 From you comes the theme of my praise in the great assembly; before those who fear you [e] will I fulfill my vows.
26 The poor will eat and be satisfied; they who seek the LORD will praise him— may your hearts live forever!
27 All the ends of the earth will remember and turn to the LORD, and all the families of the nations will bow down before him,
28 for dominion belongs to the LORD and he rules over the nations.
29 All the rich of the earth will feast and worship; all who go down to the dust will kneel before him— those who cannot keep themselves alive.
30 Posterity will serve him; future generations will be told about the Lord.
31 They will proclaim his righteousness to a people yet unborn— for he has done it.

Thursday, January 18, 2007

Today in the world of...

January 18, 2007 Day + 1387 Day +1085 off therapy
Only one more day until our little man is 6! He made it to day 41 on green light today. He is very proud to bring home his chart with the circles colored in green. I am very proud too. He just had to learn how to control himself when others got to him and I guess he did.
Once I dropped Taylor off this morning I went to CVS and tried to find a stool softener for Logan. They only had pills or a root beer flavored laxarive. Yuck! Why would they make such a crazy flavor? I opted to skip that and ask the Dr. when we go for their 3 and 6 year check ups in a few weeks. I just don’t think the battle to get him to swallow the root beer stuff would be worth the little help it gave. We headed over to school where we had to put more eye drops in his eyes. Poor little Logan’s eyes get so dry this time of year. I took him to the Dr. last year thinking it was a vision thing, but it isn’t. He had stopped doiong it and now is back at it. I will mention it again when we go, but I am pretty sure it is still just weather related dry eyes.
We went to car pool today, but no sleeping for Logan. He sat in my lap and pretended to drive while he ate a lite up sucker. His hat had made his hair stand up in the front and it looked crazy. He kept standing up to look in the mirror and would crack up.
We went to Walmart where Taylor picked out Sponge Bob cupcakes for school tomorrow and confetti cake mix for his Lightning McQueen cake. He was so excited all through the store. He picked out his own birthday gift too. He got a blue lightning McQueen that turns into a jet fighter. That makes no since to me, but it was the coolest thing to him. He got his fingers smooshed. He was sitting on the bottom of the buggy like I ask him not to a milllion times. Every time I stopped the buggy he would sit back down. He eventually got his fingers under the wheel. He kept saying it didn’t hurt, but I saw the dirty smears across his face where he whiped his eyes.
Please be in prayer for Taylor and his continued success against his cancer. Pray for all the others out there who are still fighting the fight. Pray for those who are missing a loved one or that have just started this journey.
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17th January 2007
January 17, 2007 Day + 1386 Day +1084 off therapy
Today is day 40 in a row on green light. Wow! He has requested a Batman movie if he makes it through January. I say that is fair enough. It is only 2 more days until his birthday. One of his buddies called and RSVP’d tonight and he was so excited. He is so funny talking about the party and telling me conversations they have had at school. Kids are so funny when they talk.
Taylor was thrilled to see the big sign out in front of the school said “HB Taylor Watts” Thank you Ghen Ghen and Bob for calling the school and having that done. I took a picture of it today. I am sure everyone thought I was nuts, but those small things are huge things to us.
Mr. Logan may not get to play ball this year. They have upped the price and it is going to cost a fortune to sign them both up. He has never done it and wont know the difference, so he may have to sit this year out. Taylor on the other hand is really excited this year now that he is in school with a lot of the kids that he plays with. I know he will have more fun when he actually has some friends on the team and isn’t the new kid or the little one. I guess he will always be the little one, but that is okay, he is cute!
Poor Logan had an awful night. He is so consitpated. The poor baby sat on the potty and screamed. He wanted me to hug him, so there I sat all crouched over the potty hugging him and I could feel his heart beating 90 miles an hour. It wasn’t pretty, but we got it all out and he is fine now. He actually went again a while later and I guess all was fine since I didn’t know he was in there until he screamed, “wipe my butt.”
Tomorrow is a big day in Taylor’s book. We are going to the store to pick out snacks to bring to school for his class to share for his birthday. We also have to pick out the cake mix to use on the Lightning McQueen cake for Saturday. He is so excited!
I guess that is it for us today. Just pure heavenly, normal! Praise God. Please be in prayer for Taylor’s continued success and many more birthdays. Pray for Carter who is a lot of pain. www.carterfinger.com Sarah got good news, no, great news. She is NED!!!! www.caringbridge.org/nc/sarahsmith Evan is back at the Target House and his counts are rising. Pray he gets to come home home this weekend. www.caringbridge.org/visit/evanthomason Pray for Madison who just had chemo and is having some tummy troubles. www.caringbridge.org/visit/madisonbeck
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16th January 2007
January 16, 2007 Day + 1385 Day +1083 off therapy
Hi there. Today was back to business for us all. Taylor was ready to go back to school, I guess we all were. Taylor had fun at school as always. Homework time was no fun. He tries to guess at the words rather than sound them out and we both end up frustrated. We got through it though I don’t think he knows anymore than when we started. He was busy all afternoon playing cars games on the computer. He loves to do that. He is quite the game guy these days. When he first got his PSP for Christmas he couldn’t do anything. He soon was screaming, “I am winning” and he would be in 4th place. Well, he has now finished in first place on several different occasions. He is so smart.
Logan had a good day again in his new class. He has done fine with the change. He has had no more potty issues and no accidents at school. He has no problems with me coming in the room as long as I hug and kiss him before I go. It still seems so odd to see him in that class.
I had a good day other than being off all day after missing a day. I was expecting kids that don’t come on Tuesday and calling it the wrong day at circle time. We finally got it straight and got our day going. Logan slept all through car pool which was nice, but when we got home and he was wide open I was wishing he had waited and napped at home. He actually woke up right as we were pulling forward to pick up Taylor and he went ape on me. He was so mad that he didn’t get to unbuckle and play. I couldn’t calm him down, so he screamed. The boys played for a while, did homework and got an early bath. By the time Jim came in they were in Pj’s and ready for bed all they needed was dinner. I went to Gam maw’s candle party. I got some yummy smelling candles too.
Please continue to pray for Taylor’s success against this beast. Pray for Evan who is inpatient and waiting on his counts to rise. www.caringbridge.org/visit/evanthomason Pray for Sarah whi is STILL waiting on results from her scans last week. www.caringbridge.org/nc/sarahsmith Pray for our new friend www.caringbridge.org/visit/abeltyson Pray for all the kids and families out there fighting.
posted in Latest News 0 Comments
15th January 2007
Don’t forget to sign Taylor’s Guestbook
You can do so by clicking here: http://taylorwatts.org/guestbook/addentry.php
You also have the ability to leave comments to individual updates. You can find a link to leave comments at the end of each update!
posted in Latest News 0 Comments

Tuesday, January 16, 2007

Better every day...

11 minutes on the trainer…
Posted on January 16th, 2007 by jimwatts. Categories: Training.
It gets king of boring just staring at the wall for 11 minutes. I thought I would take a short break and write some things down. It seems like just yesterday we were celebrating Taylor joining us in this world and making us a family. Just 19 short months after that, he was fighting for his life. God is good, and here we sit today watching him prepare to turn 6 years old on Friday and worrying about such things as school, which friends to invite to his birthday party, and what place he finishes in his PSP Cars video game (which I must admit, he is pretty darn good for a 5 year old). God of love watching him enjoy life. No child should have to worry or fight childhood cancer, yet right this very minute, a family is learning the words childhood cancer, and chemotherapy. I pray for the day infants can take a “cancer” vaccine and not have to every worry about fighting such a horrible disease. God willing…


Monday, January 15, 2007

A lot of updates...

January 15, 2007 Day +1384 Day 1082 off therapy
What a great day to be off work. It was a dark, dreary, wet day here in McCalla. It was a good day to stay at home and that is what we did. Guh brought the boys home around noon. They saw daddy daddy as he rode around the block. Be sure to be checking out his blog each night to keep up with his training. Logan took a nap today as usual, but he was so tired that I didn’t have to play games to get him in bed.
Taylor is looking forward to his birthday day on Friday. I can’t believe he will be 6! He is excited that daddy is going to go eat lunch with him. How fun. I was going to go, but I think I will let Jim do it and I will save my time for a different day.
It is now 6:00 and it is time to pack lunches and get 2 little boys ready for bed and school. Until tomorrow…..

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14th January 2007
January 14, 2007 Day +1383 Day 1081 off therapy
Hello again! Today we hung out at home for the most part. I broke down and did the laundry, so we will not be naked this week. We took the boys to Guh’s house to spend the night. Jim and I went to several stores as we killed time before going to see The Pursuit of Happyness. No, I didn’t spell it wrong, you will have to go see the movie to get it. It was so good. It is a very inspirational story. I really enjoyed it.
I called Guh on the way home. Logan was already asleep and Taylor was coloring and watching TV on his little pallet on the floor. He loves to sleep in the floor, he always has. They had a busy day of playing outside, going to the store and playing in the playroom.
I talked to Jacob’s mom and all is fine. Praise the Lord! Please be in prayer for all of our friends that are battling their own battles. Be in prayer for Taylor’s continued success against his cancer. Please pray for Sarah. She had scans this week and has a spot on her knee that will need to be looked into. www.caringbridge.org/nc/sarahsmith
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13th January 2007
January 13, 2007 Day +1382 Day 1080 off therapy
Hello all. Today we had a good day. We hung out at home for most of the day. Jim did his 30 mile ride today. Better him than me. I wouldn’t have made it around the block! I am proud of him for being so determied. However, I am going to be jealous when he is in shape, so I better get my butt to the gym.
Once Jim got back home the boys rode their riding toys outside for a while. We went to Costco and Walmart later in the day. Jim was not enjoying the walking very much so we went home. We bought You, Me and Dupree on pay per view and stayed at home and watched. The boys played in their clean rooms! That was a big ordeal this morning. They were told last night to clean up and they didn’t. I don’t mean their were a few toys out it was a total disaster. Taylor woke up and got his room clean this morning. He has learned that he better just get it done. Logan on the other hand could care less. He spent all morning in his room doing nothing. I gave him water and wouldn’t let him have his favorite, chocolate milk until he was done. He still didn’t care. I ended up putting all his stuff in a garbage bag and he still didn’t care. It took Taylor going outside to play for him to care. He very quickly took everything out of the bag and put it away. He went outside for a while and so far he has picked up everything once he got done with it.

posted in Latest News 0 Comments
13th January 2007
A link…
Here is a link to Jim’s blog if you would like to keep track of his training for the Ride of Love: http://jim.taylorwatts.org/

Saturday, January 13, 2007

30.12 miles, a long way...

01.13.07
30.12 miles…
Posted in Training at 6:18 am by jimwatts
That’s right, I rode 30 miles today, and I’m absolutely wore out! I’m very proud to say though I set a goal for today and made it, in what I feel is pretty good time. I only stopped 3 times and it was only for 2 minutes each time. I have a long way to go before I can ride my first century ride, but I’m getting there. tell you, I got so mad at my self around mile 25. The wind was blowing about 35 miles an hour right in my face. It felt like I was riding in sand. I started cursing myself and got down right angry that the wind was blowing so hard. It then made me think how many times the wind (a metahpor) was blowing in Taylor’s face. It’s gods way of testing us. I knew if Taylor could go through all that horrible chemotherapy, stem cell transplant and radiation, I could ride a bike 152 miles. God sometimes comes to us in strange ways, but I know that was a test for me and it makes me truly appreciate what all Taylor went through and how he handled it. He never once complained so why should I? I also think I should be able to turn my seat (saddle) in for assault. I tell you, that thing was killing me! I know I will pay tomorrow! You can view the information of the ride here: MotionBased.com It’s a pretty interesting site that takes data from a GPS and computes data and provides anaylsis of your trip. Through the first 10 miles of the ride, I was thinking, this isn’t too bad. Little did I know it would get very difficult with the wind blowing 100 miles an hour in my face! Below is the route I took on my first true training run:
Here is a summary of the ride. For some reason, my GPS maxes out at 2000 trackpoints, so the first part of my trip was cut off: